Long title | An Act to amend the Public Health Service Act to provide grants to improve the quality and availability of care for individuals and families with HIV disease, and for other purposes. |
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Nicknames |
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Enacted by | the 101st United States Congress |
Effective | August 18, 1990 |
Citations | |
Public law | 101-381 |
Statutes at Large | 104 Stat. 576 |
Codification | |
Titles amended | 42 U.S.C.: Public Health and Social Welfare |
U.S.C. sections created | 42 U.S.C. ch. 6a, subch. XXIV § 300ff et seq. |
U.S.C. sections amended | 42 U.S.C. ch. 6a, subch. XXIII § 300ee et seq. |
Legislative history | |
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The Ryan White Comprehensive AIDS Resources Emergency Act (Ryan White CARE Act, Pub.L. 101–381, 104 Stat. 576, enacted August 18, 1990), was an act of the United States Congress and is the largest federally funded program in the United States for people living with HIV/AIDS. The act sought funding to improve availability of care for low-income, uninsured and under-insured victims of AIDS and their families. The act is named in honor of Ryan White, an Indiana teenager who contracted AIDS through a tainted hemophilia treatment. He was diagnosed with AIDS in 1984 and was subsequently expelled from school because of the disease. White became a well-known advocate for AIDS research and awareness, until his death on April 8, 1990.
Unlike Medicare or Medicaid, Ryan White programs are "payer of last resort" which fund treatment when no other resources are available. As AIDS has spread, the funding of the program has increased. In 1991, the first year funds were appropriated, around US$220 million were spent; by the early 2000s, this number had almost increased 10-fold. The Act was reauthorized in 1996, 2000, 2006, and 2009. The program provides some level of care for around 500,000 people a year and, in 2004, provided funds to 2,567 organizations. The Ryan White programs also fund local and state primary medical care providers, support services, healthcare provider training programs, and provide technical assistance to such organizations.
In fiscal year 2005, federal funding for the Ryan White CARE Act was $2.1 billion. As of 2005, roughly one-third of this money went to the AIDS Drug Assistance Programs (ADAP) which provides drugs for 30 percent of HIV-infected patients. The primary activity of ADAP is providing FDA-approved prescription medication.