National Coalition for Cancer Survivorship
| Founded | October 26, 1986 |
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| Focus | Cancer Survivorship |
| Location |
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Area served
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United States |
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Key people
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Ellen Stovall (Senior Health Policy Advisor) |
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Employees
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6 |
| Slogan | the power of survivorship...the promise of quality care |
| Mission | To advocate for quality cancer care for all people touched by cancer. |
| Website | www.canceradvocacy.org |
The National Coalition for Cancer Survivorship (NCCS) is a 501(c)(3) nonprofit organization cancer advocacy organization based just outside Washington, DC in Silver Spring, MD. It is the oldest survivor-led cancer advocacy organization in the country, and works to effect policy change at the national level.
NCCS was founded in Albuquerque, New Mexico in October 1986. It was established as a 501(c)(3) non-profit by the Internal Revenue Service in 1987. NCCS relocated to the Washington, DC area in 1992. One year later, NCCS convened other patient advocates to create the Cancer Leadership Council (CLC).
NCCS pioneered the definition of a cancer survivor as being any person diagnosed with cancer, from the time of initial diagnosis until his or her death. This expansive definition also includes family members, friends, and caregivers of those diagnosed, and is the definition used by the U.S. National Cancer Institute's Office of Cancer Survivorship.
In 1998, NCCS led the national grassroots campaign THE MARCH...Coming Together to Conquer Cancer. An estimated 80,000-150,000 people attended the event in the nation's capital.
Journey Forward, a treatment summary program, was launched in partnership with three other organizations in 2009.
On June 7, 2000 President Clinton issued an executive memorandum guaranteeing that Medicare beneficiaries who enroll in approved, high-quality clinical trials will have their routine patient care costs covered by Medicare. Ellen Stovall, NCCS’s Executive Director at the time, as well as other patient advocates, advocated for the measure that allowed more seniors to participate in clinical trials.
NCCS published Imperatives for Quality Cancer Care: Access, Action and Accountability in 1996. The report led to the creating of the National Cancer Institute’s Office of Cancer Survivorship. From 2001-2007 NCCS contributed to several Institute of Medicine Reports related to quality care and survivorship. These reports include Ensuring Quality Cancer Care; Improving Palliative Care for Cancer; From Cancer Patient to Cancer Survivor: Lost in Transition; Childhood Cancer Survivorship: Improving Care and Quality of Life; and Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs.
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