Abbreviation | LBBC |
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Formation | 1991 |
Purpose | To connect people with trusted breast cancer information and a community of support. |
Headquarters | 40 Monument Rd., Ste. 140 Bala Cynwyd, PA 19004 |
Chief Executive Officer
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Jean A. Sachs, MSS, MLSP |
Website | www |
Audio | |
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“Jean Sachs, CEO, Living Beyond Breast Cancer”, May 9, 2016, WBEN-FM | |
Video | |
“Living Beyond Breast Cancer: Reach & Raise Reveal”, Living Beyond Breast Cancer | |
“Body & Soul”, Living Beyond Breast Cancer |
Living Beyond Breast Cancer (LBBC), is a national 501(c)(3) nonprofit organization headquartered in Bala Cynwyd, just outside Philadelphia, Pennsylvania in the United States. LBBC works with women who have been diagnosed with breast cancer and their caregivers throughout their experience of diagnosis, treatment and recovery. Their goal to be a "high-touch organization" that provides people with information and support of relevance to their personal experience of breast cancer. The organization supports studies of health care that are sensitive to issues of ethnicity, age, sexual orientation, and diagnosis.
Living Beyond Breast Cancer was founded in 1991 by radiation oncologist Marisa Weiss. She is a past president of the organization. Early on, Weiss ran the organization from her house, with the help of volunteers.
The organization's first executive director, Jean A. Sachs was appointed in 1996. She became CEO of the organization in 2008. Under her direction, the organization's budget and staffing have substantially expanded from an initial budget of $100,000 per year to more than $5 million per year as of 2014.
With a staff of 18 as of 2015, and a large volunteer base who donate time and expertise, LBBC reaches out to more than 70,000 people in need of information and support each year. They provide a wide range of programs and services. The organization's website (lbbc.org) offers comprehensive educational information. Information is kept up-to-date through the work of a national medical advisory board with sixty representatives. The organization also operates a Breast Cancer Helpline (1-888-753-5222). Volunteers in the organization's outreach program are often former patients themselves. A small number of Cis B. Golder Quality of Life Grants are awarded to provide financial assistance and support services to people diagnosed with breast cancer in the Philadelphia area.
LBBC has actively supported studies of the experience of cancer in ethnic and racial minority groups and the development of materials for their use. Publications include Getting Connected: African-Americans Living Beyond Breast Cancer by Patricia K. Bradley and Celebramos el Mañana: Latinas que Sobreviven el Cáncer del Seno / We Celebrate Tomorrow: Latinas Living Beyond Breast Cancer by Aracely Rosales.
LBBC has also published Breast Cancer in Focus: Getting the Care You Need as a Lesbian, Gay or Bisexual Person (2015). It is particularly important for LGBT women to be aware of possible issues, both because lesbians have a higher risk of breast cancer, and because LGBT individuals and families may face discrimination.