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Brainstem stroke syndrome

Brainstem stroke
Classification and external resources
Specialty neurology
ICD-10 G46.3
ICD-9-CM 434.91
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A brainstem stroke syndrome is a condition involving a stroke of the brainstem. Because of their location, they often involve impairment both of the cranial nuclei and of the long tracts. A person may have vertigo, dizziness and severe imbalance without the hallmark of most strokes – weakness on one side of the body. The symptoms of vertigo, dizziness or imbalance usually occur together; dizziness alone is not a sign of stroke. Brainstem stroke can also cause diplopia, slurred speech and decreased level of consciousness. A more serious outcome is locked-in syndrome.

Kate Allatt is a mother-of-three from Sheffield, South Yorkshire. She has successfully recovered from locked-in syndrome. Now she runs Fighting Strokes, and devotes her life to assisting those with locked-in syndrome.

Parisian journalist Jean-Dominique Bauby suffered a stroke in December 1995, and, when he awoke 20 days later, he found his body was almost completely paralyzed; he could control only his left eyelid. By blinking this eye, he slowly dictated one alphabetic character at a time and, in so doing, was able over a great deal of time to write his memoir, The Diving Bell and the Butterfly. Three days after it was published in March 1997, Bauby died of pneumonia. The 2007 film The Diving Bell and the Butterfly is a screen adaptation of Bauby's memoir. Jean-Dominique was instrumental in forming the Association du Locked-In Syndrome (ALIS) in France.

In the summer of 2011, Rabbi Ronnie Cahana, Rabbi Emeritus of Congregation Beth-El in Montreal, suffered a severe brainstem stroke that left him in a locked-in state, able to communicate only with his eyes. With the help of his family, he continued to write poems and sermons for his congregation, letter by letter, through blinking. He has since regained his ability to breathe by himself and speak with his mouth. He describes his experiences as a blessing and a spiritual revelation of body and mind. His story was told in a Ted talk given by his daughter called: "My Father, Locked-in his Body but Soaring Free". He is the son of painter Alice Lok Cahana.


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