Parkinson's Disease Foundation
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| Founded | 1957 |
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| Founder | William Black |
| Focus | "Parkinson's disease research, education and public advocacy" |
| Location | |
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Area served
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United States |
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Key people
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John L. Lehr, CEO John Kozyak, Esq., Chair |
| Website | www.pdf.org |
John L. Lehr, CEO
From the time of its creation in 1957, the Parkinson’s Disease Foundation has been a nonprofit organization committed to finding a cure for Parkinson’s Disease and ensuring the best quality of life for those who live with the disease. In 2014, the organization laid out a strategy that involves investing in leaders in research, health care, and the patient community in order to build collaborative teams to work toward a cure.
One of the hallmarks of PDF’s work is a focus on meeting the needs of people living with Parkinson's by incorporating their perspective into its activities, such as the People With Parkinson's Advisory Council, which advises PDF on all projects, as well as the Parkinson's Advocates in Research program, which prepares people with Parkinson's disease to play a direct role in shaping the clinical research process.
In August of 2016, the Parkinson's Disease Foundation and the National Parkinson Foundation finalized a merger of the two organizations. They will operate as The Parkinson’s Foundation with offices in New York City and Miami.
Since its founding in 1957, PDF has funded more than $115 million worth of scientific research in Parkinson's disease. In 2014, Genetic Engineering & Biotechnology News named PDF number seven in its list of the top 30 grant-giving disease foundations.
PDF's research funding program includes basic research as well as cutting edge clinical research and comprises four distinct categories: Center Grants, the International Research Grants Program (IRGP), Fellowship and Career Development Grants, and Collaborative Endeavors, which includes PDF's Advancing Parkinson’s Treatments Innovations Grant.
PDF's different types of grants allow it to pursue multiple strategies for funding research that aims to improve the lives and futures of people with Parkinson's Disease. PDF’s specific funding strategies include:
In September 2013, PDF launched the first PDF Community Choice Research Award, an initiative that allows the Parkinson's disease community to choose a priority in which to fund a research project. Through the award, PDF provided funding from a pool of $30,000 to research teams to seek answers to specific scientific questions posed by members of the Parkinson's community. Community members were invited to submit their research priorities online or in person at the World Parkinson Congress in the fall of 2013.
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