Androgen Insensitivity Syndrome Support Group Australia
| Abbreviation | AISSGA |
|---|---|
| Formation | 1985 |
| Type | NGO |
| Purpose | Intersex peer and family support |
|
Region served
|
Australia |
|
President
|
Bonnie Hart |
| Website | aissga.org.au |
The Androgen Insensitivity Syndrome Support Group Australia (AISSGA) is possibly the oldest known intersex organization, established in 1985. It provides peer and family support, information and advocacy. The group is run by volunteers, for people with intersex variations such as androgen insensitivity syndrome.
The Androgen Insensivitity Syndrome Support Group Australia may be the oldest intersex organization, established in 1985, prior to the Androgen Insensitivity Syndrome Support Group (UK), established in 1988, and the Intersex Society of North America (ISNA) in 1993.
The AISSGA was founded by Dr Garry Warne, then the Director of Paediatric Endocrinology at the Royal Children's Hospital, Melbourne. It is now run by a board of people with intersex variations, and parents. Notable members include Bonnie Hart, Phoebe Hart and Tony Briffa. Many members of the group took part in Phoebe Hart's 2010 autobiographical road movie, Orchids, My Intersex Adventure.
The core activity of the Group is to provide peer and family support, information and advocacy. It produces regular newsletters, known as dAISy, an annual conference, and regular meetings in Brisbane, Melbourne and Sydney.
The group has advocated on intersex human rights issues since at least the turn of the century, with submissions on discrimination and prenatal terminations dating back to 2003.Tony Briffa was published in Nature in April 2004, calling for an end to irreversible sex assignment treatments in infancy. The group has also made a similar submission to a 2013 Australian Senate inquiry on involuntary or coerced sterilisation of people with disabilities.
In March 2017, representatives of Androgen Insensitivity Syndrome Support Group Australia participated in an Australian and Aotearoa/New Zealand consensus "Darlington Statement" by intersex community organizations and others. The statement calls for legal reform, including the criminalization of deferrable intersex medical interventions on children, an end to legal classification of sex, and improved access to peer support.
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