ALS Association
 |
|
| Motto | Create a world without ALS |
|---|---|
| Founded | 1985 |
| Type | Non-profit |
| Focus | Research, Patient Aid |
| Location | |
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President and CEO
|
Barbara Newhouse |
|
Revenue
|
$29 million (2013) |
| Website | alsa.org |
The ALS Association is an American nonprofit organization that raises money for research and patient services, promotes awareness about and advocates in state and federal government on issues related to amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig's disease. The ALS Association is broken up into distinct chapters each servicing a particular geographic area of the United States all working under the umbrella of a national charter and administrator. While each individual chapter is basically autonomous, some smaller chapters rely heavily on the national organization for assistance. Each chapter provides education, advocacy and essential services to ALS patients, their families and caregivers, while the national organization funds research and supports the cause as a whole.
The ALS Association has committed more than $100 million to find effective treatments and a cure for Lou Gehrig’s Disease. Their global research effort has helped increase the number of scientists working on ALS, advanced new discoveries and treatments, and has shed light on the complex genetic and environmental factors involved in ALS.
Their Clinical Management Research Program focuses on managing the care of people with ALS in such areas as nutrition, respiration, mobility and psychosocial needs. Since 1998, The Association has funded 22 clinical management research projects representing a total commitment of $750,000.
The ALS Association’s TREAT ALS (Translational Research Advancing Therapy for ALS) initiative combines efficient new drug discovery with priorities set for existing drug candidates, to accelerate clinical testing of compounds with promise for the disease. Already partnering with many organizations around the world including the National Institutes of Health (NIH), The ALS Association brings together an expert team of scientific and business advisors to steer this import drug discovery program.
ALS focused workshops for the scientific community are hosted by The ALS Association during the year to advance current knowledge about the mechanisms and cause(s) of ALS, attract more neuroscientists to ALS research and foster collaborative research. The Association also partners with other scientific and voluntary organizations to host symposia on neurodegenerative diseases where mechanisms of the diseases may be similar and offer clues to understanding ALS.
The ALS Association network plays a lead role in advocacy for increased public and private support of ALS research and health care reform that responds to the demands imposed by ALS.
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