Alliance for Heart Failure

The Alliance for Heart Failure is a coalition of charities, patient groups, professional bodies, public sector organisations and corporate members working together to raise the profile of heart failure within the UK Government, the National Health Service, and British media. It was formed in October 2015.

The Alliance for Heart Failure’s mission is to achieve better outcomes for people with heart failure by ensuring timely diagnosis and access to the right care and support.

Current members of the Alliance for Heart Failure are:

The inaugural Co-Chairs are Angela Graves (Pumping Marvellous Foundation) and Professor Andrew Clark (British Society for Heart Failure). They have a 12 month tenure. Day-to-day decisions are made by a steering committee.

The Alliance for Heart Failure is supported and funded by Bayer, Medtronic Limited, Novartis Pharmaceuticals UK Ltd, and Roche Diagnostics Ltd. Funders are not responsible for any of the materials produced by the Alliance for Heart Failure, which are created independently by the Alliance’s Secretariat.

In 2016, the The All Party Parliamentary Group]] (APPG) on Heart Disease, chaired by Stuart Andrew MP, held an inquiry into living with heart failure. Written and oral evidence was provided by patients, healthcare professionals, and commissioners. The Inquiry’s report, Focus on Heart Failure, was published in September 2016 and made ten recommendations for improving heart failure services.

Nine members of the Alliance for Heart Failure were co-opted onto an Advisory Panel for the Inquiry. The panel had ten members in total.

1. Heart failure affects 550,000 people in the UK, with many more undiagnosed. Slow diagnosis is a serious issue, compounded because symptoms are similar to other pathologies like COPD. It can take around four months from presenting symptoms to confirmed diagnosis.

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